Your voice made a difference!

THANK YOU to all those families impacted by limb-girdle muscular dystrophy types 2A, 2C, 2D, 2E, 2F, and 2I who made their voices heard at the LGMD EL-PFDD! Whether you were on camera, called in, submitted written comments, or participated in live polling, you helped shape this meeting by sharing your unique perspectives.

We encourage you to stay connected:

• Please use this link to watch the meeting in its entirety (including the portion that was not aired live due to a YouTube glitch) or paste this into your browser: https://lgmdpfdd.com/
• Continue sharing your comments, whether or not you were able to join us live. This form will be open until October 23, 2022. Scroll past the video to access the purple “Submit a Comment” box.
• The LGMD Coalition will be distributing a Voice of the Patient Report in early 2023, informed by this meeting and your verbal and written comments. It will be posted on Coalition to Cure Calpain 3’s and will be made available publicly.