Together we are STRONGER: 3rd annual Limb Girdle Muscular Dystrophy Awareness Day

Limb Girdle Muscular Dystrophy Awareness Day is an annual collaborative effort to globally raise awareness of individuals living with Limb Girdle Muscular Dystrophy (LGMD) and is held on September 30th.

The third annual global “Limb Girdle Muscular Dystrophy Awareness Day” will be held on September 30th 2017.

For far too long, Limb Girdle Muscular Dystrophy has been an orphaned rare disease that has not gotten the attention of researchers, health care providers or the general public, that it deserves. Even many patients living with LGMD have limited knowledge of their LGMD diagnosis and progressive disease process.

Coalition to Cure Calpain 3 has joined organizations representing multiple LGMD subtypes to plan Limb Girdle Muscular Dystrophy Awareness Day. Our goal is to globally draw attention to this group of rare neuro-muscular diseases which can impact the lives of many from childhood through adulthood as LGMD occurs in all parts of the world & among all ethnic groups.

We believe that through social media, the participation and awareness will have a broader reach and impact.  To keep abreast of our global initiatives and the educational components of LGMD Awareness Day, and to learn how you can be an ambassador for LGMD Awareness Day, visit this website and  join us on Facebook.