Coalition to Cure Calpain 3 is sharing the following communication from the University of Rochester regarding a voluntary research survey to be completed by those living with LGMD2A/R1, a form of calpainopathy, or by their caregivers. Study Investigator: Rabi Tawil, MD
Organizations team up to urge health officials to prioritize the neuromuscular disease community for COVID-19 vaccine access
As distribution of COVID-19 vaccines begins, the Muscular Dystrophy Association led Coalition to Cure Calpain 3 and 18 other partner organizations in advocating to over 55 states and localities, urging health officials to prioritize access for the neuromuscular disease community.
Research survey for rare disease patients and their families about impacts of COVID-19
Rare disease patients and caregivers who live in the USA: How are you being impacted by the novel coronavirus pandemic? Please complete a 20-minute online research survey from home to share your experiences. This study is being conducted by the
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