Research survey for rare disease patients and their families about impacts of COVID-19

Rare disease patients and caregivers who live in the USA: How are you being impacted by the novel coronavirus pandemic? Please complete a 20-minute online research survey from home to share your experiences. This study is being conducted by the Rare Diseases Clinical Research Network at the National Institutes of Health (NIH). Is access to care changing? Can you get needed medical and nutritional supplies? Are stress and anxiety impacting you and your family? Your responses may help researchers understand the impacts of COVID-19 on the rare disease community. Complete the survey or learn more at

https://RareDiseasesNetwork.org/COVIDsurvey

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