Help us make a big change for the LGMD Community

If you live in the US, we need your help!

Coalition to Cure Calpain 3 has been working with Muscular Dystrophy Association (MDA) and other LGMD foundations to develop diagnostic codes specific to LGMD. Currently, anyone diagnosed with LGMD is classified using “Other Muscular Dystrophy” as the diagnostic code in their medical records. As part of the process to add the new LGMD specific diagnostic codes, the Centers for Disease Control and Prevention (CDC) is accepting feedback until May 10th.

Click here to sign our petition and make your voice heard!

Why is this important? Though this change might seem small and technical, if enacted, it would have significant benefits for the LGMD community, from potentially shortening the diagnosis timeline patients face, to delivering precise medical care, to improving clinical trials and future access to targeted treatments.