Daniel Ferguson LGMD Foundation Launches

C3 is pleased to share the launch of an Australian-based organization, the Daniel Ferguson LGMD Foundation. This registered charity aims to improve the lives of those living with LGMD2A/R1 by improving awareness, increasing genetic testing, and enabling those living with the condition to better control their future.

The Foundation bears the name of Daniel Ferguson, a person who has been living with Limb-Girdle Muscular Dystrophy Type 2A/R1 for 25 years, who, with the same drive and commitment he has brought to all aspects of his life, has made it his mission to ensure that others living with LGMD 2A/R1 can live a full and enjoyable life.

For more information, visit the Foundation’s website and Facebook page.