The Muscular Dystrophy Coordinating Committee (MDCC) is a federal advisory committee that aims to coordinate the activities repeated to muscular dystrophy research across the National Institutes of Health (NIH) and other federal programs including the Centers for Disease Control and Prevention, the Food and Drug Administration, and the Department of Defense. The 18 members of the MDCC include representatives from these federal agencies as well as several representatives from the patient advocacy community.
We are excited to announce that Coalition to Cure Calpain 3 Scientific Director Dr. Jennifer Levy was approved by Health and Human Services Secretary Alex Azar to represent C3 and the LGMD2A/R1 community at the MDCC. Dr. Levy’s knowledge of LGMD research and connection with the community will put her in a position to be both a great resource to the committee and a strong advocate for individuals with LGMD2A/R1.
MDCC Meetings occur twice yearly and are open to the public. More information about the committee and upcoming meetings can be found at mdcc.nih.gov.