Coalition to Cure Calpain 3 is proud to be one of 17 organizations dedicated to LGMD to have collaborated on a statement submitted to the Food and Drug Administration in conjunction with the recent Patient-Focused Drug Development Meeting Patient Perspectives on Gene Therapy Products.

CLICK HERE TO READ THE FULL LETTER

Special thanks to The Speak Foundation, Joshua Thayer Esq., and Bradley Williams PhD.

The letter was submitted by the following organziations:

  • Beyond Labels & Limitations
  • Breathe With MD
  • Coalition to Cure Calpain 3
  • CureLGMD2I Foundation
  • GFB Onlus
  • The Jain Foundation
  • Kurt+Peter Foundation
  • LGMD Awareness Foundation
  • LGMD1D/D1 Foundation
  • LGMD2D Foundation
  • LGMD2I Research Fund
  • LGMD2L Foundation
  • McColl Lockwood Laboratory for Muscular Dystrophy Research
  • Muscular Dystrophy Association
  • Proyecto Alpha
  • The Speak Foundation
  • Team Titin
C3 partners with 16 LGMD organizations in letter to FDA