Coalition to Cure Calpain 3 is proud to be one of 17 organizations dedicated to LGMD to have collaborated on a statement submitted to the Food and Drug Administration in conjunction with the recent Patient-Focused Drug Development Meeting Patient Perspectives on Gene Therapy Products.
CLICK HERE TO READ THE FULL LETTER
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Special thanks to The Speak Foundation, Joshua Thayer Esq., and Bradley Williams PhD.
The letter was submitted by the following organziations:
- Beyond Labels & Limitations
- Breathe With MD
- Coalition to Cure Calpain 3
- CureLGMD2I Foundation
- GFB Onlus
- The Jain Foundation
- Kurt+Peter Foundation
- LGMD Awareness Foundation
- LGMD1D/D1 Foundation
- LGMD2D Foundation
- LGMD2I Research Fund
- LGMD2L Foundation
- McColl Lockwood Laboratory for Muscular Dystrophy Research
- Muscular Dystrophy Association
- Proyecto Alpha
- The Speak Foundation
- Team Titin
C3 partners with 16 LGMD organizations in letter to FDA