The GRASP-LGMD is currently recruiting for a natural history study for individuals with mutations in CAPN3 (calpain 3). This study will inform the design of future therapeutic trials and a better understanding of the disease. Participants can now enroll at Virginia
The 6th Annual LGMD Awareness Day is Coming Up!
September is Muscular Dystrophy Awareness Month and on September 30 we will be celebrating the 6th annual LGMD Awareness Day worldwide! You can help C3 raise awareness for LGMD in your community and through social media. Today we are proud
Care Questionnaire Study for the LGMDs – Your help is needed!
The following is being shared on behalf of Lindsay Alfano, PT, DPT, PCS, Nationwide Children’s Hospital. The goal of the “Care Questionnaire Study for the LGMDs” is to understand current care practices for diagnosis and management of care for individuals
Attention Healthcare Professionals: Virtual TREAT-NMD LGMD Masterclass To Be Held September 23-24, 2020
Applications have now opened for the 1st TREAT-NMD Limb Girdle Muscular Dystrophy Masterclass. The masterclass will now be an e-learning event, with more details to follow soon. The event will take place on Wednesday 23rd and Thursday 24th September 2020 and feature sessions
Notes from 23rd annual meeting of the American Society for Gene and Cell Therapy
The American Society for Gene and Cell Therapy (ASGCT) annual meeting kicked off on Tuesday, May 12, 2020. Due to COVID-19, the meeting was held virtually. This meeting covers the field’s latest and most innovative science across all diseases and
May 20 is Clinical Trials Day
Clinical Trials Day occurs every year on May 20 to recognize the people who conduct clinical research trials and to provide an opportunity to raise awareness of clinical trials. This date was chosen to commemorate the day that James Lind
Research survey for rare disease patients and their families about impacts of COVID-19
Rare disease patients and caregivers who live in the USA: How are you being impacted by the novel coronavirus pandemic? Please complete a 20-minute online research survey from home to share your experiences. This study is being conducted by the
COVID-19 Resources for the LGMD2A/R1 Community
Like many across the world, we at C3 are staying home to protect ourselves and others during the COVID-19 pandemic. While working from home, we continue to advance our mission of supporting research to find a cure for LGMD2A/R1. The
Dr. Timothy Dalton Spins for a Cure!
We are grateful to Dr. Timothy Dalton for generously donating his winnings of $7,700 from his March 2, 2020 appearance on the popular television game show “Wheel of Fortune” to C3! As a non-profit organization dedicated to funding research efforts
Join Coalition to Cure Calpain 3 in celebrating Rare Disease Day!
Rare Disease Day takes place on the last day of February every year, with the goal of raising awareness about rare diseases and their impact on patients’ lives. Over 300 million people are living with one or more of over
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