Author: Jennifer Levy

Muscle Membrane Serendipity Conference

Key leaders from pharma, academia, and the nonprofit sector convened in Iowa City, Iowa for the Muscle Membrane Serendipity: Past, Present and Future conference on July 20-22, 2017. The invitation-only conference was organized by C3 Scientific Advisory Board member Dr.

International LGMD2A Patient Registry

Clinical studies and trials involve research using human volunteers (also called participants) that is intended to add to medical knowledge. Developing new medicines and treatments is a lengthy and complex process, relying heavily on volunteer participation to help with better

Rare disease stakeholders connect at 2017 RARE Patient Advocacy Symposium

Rare disease patients, caregivers, representatives from advocacy organizations, and other rare disease stakeholders met on May 19, 2017 in Philadelphia for the 2017 RARE Patient Advocacy Symposium, a partnership of Global Genes and the Penn Medicine Orphan Disease Center. The

C3 Awards Grant to Dr. Melissa Spencer to Screen for Calpain 3 Targets

Coalition to Cure Calpain 3 (C3) is excited to announce that we are funding a new research project with Dr. Melissa Spencer at the University of California Los Angeles. The project is titled “Identification of calpain 3 substrates through use

Coalition to Cure Calpain 3 Announces Conclusion of Current Request for Application

The C3 RFA that was announced on September 15, 2016 is drawing to a close, and we request that all submissions, which we have been receiving on a rolling basis, be sent to Dr. Jennifer Levy no later than June

C3 supports generation of new LGMD2A disease model for research

C3 is excited to announce that we are funding a research project with Dr. Cathleen Lutz, Director of the Rare and Orphan Disease Center at The Jackson Laboratory in Bar Harbor, Maine. Dr. Lutz works with researchers and disease foundations

C3 Lends Support to New Initiative in Genetic Testing for LGMD2A Patients

Coalition to Cure Calpain 3 is excited to announce that we are funding the MYO-SEQ project at the John Walton Muscular Research Centre at Newcastle University (UK). We are partnering with several patient organizations and biopharmaceutical companies to support this