Coalition to Cure Calpain 3 provides support for promising research into finding treatments or a cure for limb-girdle muscular dystrophy, type 2A (LGMD2A/R1, a form of calpainopathy). The unrelenting nature of this disease takes its victims from full mobility to a wheelchair within 11-28 years after the onset of symptoms. LGMD2A/R1 attracts significantly fewer research dollars than other forms of muscular dystrophy and thus fewer researchers working to understand the disease and discover a cure.
The sole focus of C3 is on supporting researchers rather than on providing services to those who have the disease. Thus, all of the funds that are raised go directly into research labs, into bringing researchers together to exchange ideas and collaborate, and into supporting a patient database which would give researchers a list of people to contact about clinical trials of promising therapies.
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Coalition to Cure Calpain 3 (EIN #90-0616879) is a 501 (c)(3) tax-exempt public charity. As such, all donations are fully tax deductible. Download our IRS determination letter here.